| ▲ | __MatrixMan__ 3 hours ago |
| It has always bothered me that by "spectrum" they mean not the sort of continuous thing that spectra actually are, but instead some disjoint set of "colors" any one of which might describe a person. That's called a partition, and its in an entirely separate thing. When I tell this to people they understand immediately that I am in fact on that "spectrum". |
|
| ▲ | munificent 3 hours ago | parent | next [-] |
| Here are three separate metaphors: 1. A linear continuum (like wavelength for light) from "no autism" to "really bad autism". 2. A collection of disjoint sets (like individual named colors like "cyan" and "puce") for cases like "really into trains autism", "freaks out at parties autism", "non-verbal autism", etc. 3. A continuous mixture of different properties (like rgb(.1, .2, .05)) for symptoms like "10% social dysfunction", "20% repetitive behavior", "5% sensory overstimulation". When people describe autism as a spectrum disorder, they generally mean the third metaphor. It's a mixture of different symptoms and different autistic people have different amounts of those symptoms but all people diagnosed with autism have a significant amount of them and their symptoms will have some amount of overlap with other autistic people. |
| |
| ▲ | hosh 2 hours ago | parent | next [-] | | Number (3) has better explanatory powers than (1). However, for the purpose of assessing social and family impact, it is rendered to (1). Both schools and state (US) programs use (1) to assess if a child qualifies for support. This is not always related to how to parent or educate the child. Fortunately, the US school system with IEP (individualized educational plans) are developed along (3). (Source: two of my kids have ASD) None of that necessarily helps in informal social contexts or in professional workplace settings. I think the American Disabilities Act covers reasonable accommodations for people with autism spectrum disorders, though I am not sure if it requires legal disabled status. Lastly: I met a Native (Navajo) family with a child that seems to me, have some developmental disabilities — but I think they take a very different approach. For one, they don’t seem to have the usual social stigma associated with this, and are baffled why I would suggest getting state support for early childhood intervention. If anything, I would not be surprised if they thought I was, yet again, someone unthinkingly pushing a colonialist worldview. | | |
| ▲ | Pet_Ant 2 hours ago | parent [-] | | > Number (3) has better explanatory powers than (1). However, for the purpose of assessing social and family impact, it is rendered to (1). My first thought was is (1) more of a projection of (3) from multiple dimensions to one, or more like the magnitude. Also, it is known thing or are "trains" a euphemism now like "friend of Dorothy"? | | |
| ▲ | munificent 6 minutes ago | parent | next [-] | | > Also, it is known thing or are "trains" a euphemism now like "friend of Dorothy"? I meant it only as a reference that one of the common characteristic symptoms of autism is a deep focus on some topic of special interest. In boys with autism, trains, cars, or other machines are a common one. | |
| ▲ | dfxm12 an hour ago | parent | prev | next [-] | | It's the punchline to a meme. This is one example: https://encrypted-tbn0.gstatic.com/images?q=tbn:ANd9GcRgeiEh... I don't think it's quite the same as calling yourself or someone else a "friend of Dorothy". People who say they are into trains usually precisely mean they are into trains. | |
| ▲ | tbrownaw 37 minutes ago | parent | prev [-] | | While that word does get used to refer to people sometimes, it's afaik always hostile (slur rather than euphemism). |
|
| |
| ▲ | overfeed 25 minutes ago | parent | prev | next [-] | | > 1. A linear continuum (like wavelength for light) from "no autism" to "really bad autism" This is the least helpful metaphor, when applied to anything with more than one dimension. "Really bad autism" can describe a multitude of unique symptoms.and is nearly information free, similar to describing someone as having "A really serious illness" | | |
| ▲ | brudgers 14 minutes ago | parent [-] | | For reasons I am compelled to comment that “really bad autism” is not a medical description. |
| |
| ▲ | frereubu 22 minutes ago | parent | prev | next [-] | | To take the rbg metaphor further, it should really be a "gamut" rather than a "spectrum". | | |
| ▲ | munificent 5 minutes ago | parent | next [-] | | "Spectrum" works too in that if you take white light and split it in a prism, it is spread out into its separate but overlapping components of light at different wavelengths. | |
| ▲ | giardini 6 minutes ago | parent | prev [-] | | Perhaps "big ball of mud"? "mess"? "cluster f*k"? Arguing relevant metaphors in HN?! A new low... |
| |
| ▲ | dfxm12 an hour ago | parent | prev [-] | | I don't think the 3rd metaphor fits. rgb values still points to a single color, which maps back to a single value on a 0 -> 1 or red -> violet continuum. It's more apt to describe it like a multi channel audio mixer. Many different channels ("really into a specific topic", "freaks out at parties"), each with their own value (10%, 20%). Metaphors often fail though, so it might just be best to say what we mean plainly. | | |
| ▲ | dragonwriter 44 minutes ago | parent | next [-] | | > rgb values still points to a single color, which maps back to a single value on a 0 -> 1 or red -> violet continuum. No, it doesn't. Wavelength is unidimensional, but color can mix many wavelengths, and RGB is a 3d color system which doesn't cover all combinations of visible light but does approximate the way most human vision works, and is therefore useful as a description for human-perceived colors (and more accurate than picking a single point on the unidimensional wavelength spectrum for that purpose.) | |
| ▲ | delecti an hour ago | parent | prev | next [-] | | An RGB value points to a single color, but if R is "really into trains" and B is "repetitive behavior" and G is "susceptibility to sensory overload", then it's basically the same metaphor as a multi channel audio mixer, except understandable to a different (and likely bigger) pool of people. | | |
| ▲ | dfxm12 an hour ago | parent [-] | | That line of reasoning doesn't follow as RGB implies there are exactly three measures, which isn't the case. | | |
| ▲ | jfindper 16 minutes ago | parent | next [-] | | >RGB implies there are exactly three measures It's a metaphor. It helps people build an intuition. It doesn't need to be exact to do that. | |
| ▲ | delecti 15 minutes ago | parent | prev [-] | | That's just the limits of it being a metaphor. Audio mixers also only have a finite number of channels, but are also much less familiar to most people. |
|
| |
| ▲ | darzu an hour ago | parent | prev [-] | | RGB doesn't map to a single line, you're thinking just about the hue. RGB is a proper vector that addresses a whole 3D color space. |
|
|
|
| ▲ | bonsai_spool 3 hours ago | parent | prev | next [-] |
| > It has always bothered me that by "spectrum" they mean not the sort of continuous thing that spectra actually are, but instead some disjoint set of "colors" any one of which might describe a person. That's called a partition, and its in an entirely separate thing. Hmm, what are these 'colors' in your framing? I don't think anyone feels that ASD comprises totally distinct, 'disjoint' descriptions. It's true that there are multiple parameters along which one may vary, but that's true of any human syndromic disease, and probably true for any human disease, in general. Here's a popular press article that talks about a very recent framing of autism that uses clinical and genetic data: https://www.simonsfoundation.org/2025/07/09/new-study-reveal... |
|
| ▲ | 4ndr3vv 3 hours ago | parent | prev | next [-] |
| > It has always bothered me that by "spectrum" they mean not the sort of continuous thing Oh but they do. the "spectrum" is by how socially acceptable someone's autism is. |
| |
| ▲ | rusk 3 hours ago | parent [-] | | > how socially acceptable someone I intuitively understand this but has it been clinically defined? | | |
| ▲ | toast0 2 hours ago | parent | next [-] | | DSM-V [1] describes criteria / symptoms in two groups (caps from document, sorry): > A. PERSISTENT DEFICITS IN SOCIAL COMMUNICATION AND SOCIAL INTERACTION ACROSS CONTEXTS, NOT ACCOUNTED FOR BY GENERAL DEVELOPMENTAL DELAYS > B. RESTRICTED, REPETITIVE PATTERNS OF BEHAVIOR, INTERESTS, OR ACTIVITIES For criteria A, severity is more or less measured by how much social impairment is observed --- that's a measure of social acceptability in some fashion. For criteria B, the severity criteria is about "interference with functioning in contexts" as well as observed distress of the patient. Interference with functioning can be related to the patient resisting the desired function, but it can also be because the patient is socially excluded due to their behavior. Although, I should point out clinical criteria in general and the DSM in specific are a formalization of arbitrary judgements that describe observable characteristics grouped into a diagnostic category; this can be useful, but it's not really an understanding of the underlying condition(s), it's a handbook of things to look for when a patient comes asking for help and what things to try to help them. If someone has the same underlying conditions but manages to pass as socially acceptable, they may not come in for help, and that's fine too. When multiple underlying conditions result in similar observable criteria, the DSM gets pretty confused; there's not much in the way of attaching traces and getting debug logs for mental processes though, especially out in the world, so this is the best society has, I guess. [1] https://depts.washington.edu/dbpeds/Screening%20Tools/DSM-5(... | | |
| ▲ | kube-system an hour ago | parent [-] | | "Society's acceptance of a person who has a condition", and "a condition that inhibits social interactions" are two entirely different things. | | |
| ▲ | notarobot123 16 minutes ago | parent [-] | | If I persistently ask awkward questions, that might "inhibit social interactions". If my community was tolerant and even accepting of this behavior it might not inhibit social interactions quite as much. They are different things for some behaviors but extremely closely related for others. |
|
| |
| ▲ | JohnMakin 3 hours ago | parent | prev | next [-] | | ASD is defined by the level of support the individual needs. It says nothing about “fitting in” or by pain or anything else like that | |
| ▲ | sundarurfriend 3 hours ago | parent | prev | next [-] | | I suspect part of your parent comment's point is that this is an implicit bias in the way the spectrum is defined and thought of, so it wouldn't be clinically defined in those terms explicitly. In other words, the "spectrum" doesn't exist to capture the variation in the autistic person's own experience - if it did, it would look very different. It's a remnant of a time when autism was seen as just a "problem" for the people around you, and the spectrum measures how much of a problem you are and how weird you are seen by their measure; which does map onto a continuous line in the same way. That does capture something useful, but only a small part of what autism actually comprises, and is much less useful at capturing the autistic person's own experience of it, and makes it a less useful tool to them than people might assume. | | |
| ▲ | michaelt an hour ago | parent [-] | | It's not unusual for diagnostic criteria to hinge on the impact the thing is having on your work/family/school life. Alcoholism, for example - we don't define alcoholism as drinking ≥2 bottles of wine a week, or say that 1 glass of wine a week is part of an alcoholism spectrum. Instead, we ask whether drinking often interferes with taking care of home and family; or leads to job/school troubles; or has lead to getting arrested. How much of a problem an alcoholic is for others being roughly equal to how much of a problem alcoholism is for the alcoholic. | | |
| ▲ | sundarurfriend 33 minutes ago | parent [-] | | > Instead, we ask whether drinking often interferes with taking care of home and family; or leads to job/school troubles; or has lead to getting arrested. We don't ask just that, and the diagnosis doesn't hinge on those - in fact those account for only 3 (or 4 depending on how you count) of the 11 diagnostic criteria for alcohol use disorder. The others are about the person's own experience with alcohol, the difficulties and psychological problems caused by it to the person themself. And that's for alcohol use, an external behaviour-based problem with a specific narrow scope. Autism is a much wider construct with much more varied impact and experiences, and yet in practice people are placed somewhere on the spectrum based mainly on external interactions and troubles. Historically this came about because people who were "low-functioning" caused more difficulties to others, whereas "high-functioning" folk didn't - even though they might have comparable amounts of difficulties and psychological anguish internally and in need of similar help too. This simplistic view is changing slowly within the field and with some therapists recognizing it better for what it is, but it's still not nearly as widely recognized as it needs to be. |
|
| |
| ▲ | mikestorrent 3 hours ago | parent | prev | next [-] | | Has social acceptability in any context ever been defined, beyond say, rules of etiquette? It's a free market and everyone is arguably entitled to test to see what it will bear. | |
| ▲ | lazide 3 hours ago | parent | prev [-] | | The entire nature of the field of psychology and mental health treatment is relative to pain and dysfunction. If people fit in well and didn’t have issues (either internal pain/suffering or society interaction pain/suffering), they are not applicable to the field. | | |
| ▲ | prepend an hour ago | parent [-] | | This is key and what makes something a disorder. Everyone experiences some obsession or compulsion. But only some experience it to the degree of a disorder. Just like everyone has some “autistic” tendencies. But it is only a disorder in some. |
|
|
|
|
| ▲ | maxbond 3 hours ago | parent | prev | next [-] |
| > It has always bothered me that by "spectrum" they mean not the sort of continuous thing that spectra actually are, but instead some disjoint set of "colors"... I get what you mean but I feel compelled to point out that colors are on a spectrum. A partition can be a quantized spectrum. |
| |
| ▲ | an hour ago | parent | next [-] | | [deleted] | |
| ▲ | rusk 3 hours ago | parent | prev [-] | | GP’s concern is that the quantisation scale is not representative of linear severity. It’s more like classification of disjoint characteristics tagged with colour | | |
| ▲ | maxbond 2 hours ago | parent [-] | | I won't offer an opinion of my own but I don't disagree with that take. |
|
|
|
| ▲ | tshaddox 2 hours ago | parent | prev | next [-] |
| > It has always bothered me that by "spectrum" they mean not the sort of continuous thing that spectra actually are, but instead some disjoint set of "colors" any one of which might describe a person. Wasn't Newton making the point that we normally perceive and treat colors as qualitatively different, but that they're in fact caused by a single underlying mechanism that can take on any of a continuous range of quantities? Thus using the term "spectrum disorder" would be making precisely the same point, to describe a set of apparently qualitatively different disorders that are in fact caused by some underlying mechanism with a range of quantities? (To be clear, I don't know if any so-called spectrum disorders actually meet this criterion, and it's probably more complicated than that, but it seems to be the reason the term was chosen.) |
|
| ▲ | IAmBroom 11 minutes ago | parent | prev | next [-] |
| > "...they mean..." It's always some anonymous "they". Those bad people. You know; not reasonable folk like you and me. "Them". |
|
| ▲ | spongebobstoes 3 hours ago | parent | prev | next [-] |
| spectrum is a good word because of spectroscopy, where for example a single beam of light is broken down into constituent parts in this ASD model, a single person is like a light source, ASD traits are like frequencies, and ASD itself is like the EM spectrum this is useful because our best understanding of ASD today is multidimensional as you say, it is not supposed to be used as like "the spectrum" is a line from "normal" to "autistic" unfortunately most people aren't familiar with spectroscopy, but I think it's a good metaphor do you have a suggestion for a better word than spectrum, that could convey the same rich metaphor but be less easily misunderstood? |
| |
| ▲ | jermaustin1 3 hours ago | parent [-] | | That metaphor actually fits well with how it is interpreted in my head. Even the "visual" of a spectroscope's graph, just turned 90º in my mind. |
|
|
| ▲ | brightball 3 hours ago | parent | prev | next [-] |
| Numerous people don’t realize this or that there’s not some simple consistent blood test to say “yep, he’s got autism.” Moreover, people have no idea how difficult this makes it to properly test anything related to it because control groups are so difficult. It’s why any type of study that claims something does or does not, definitively “cause autism” is highly unlikely. You can identify potential contributors, but that’s about as good as it gets. People in absolutes about this stuff can’t be taken seriously. |
|
| ▲ | jckahn 3 hours ago | parent | prev | next [-] |
| This is the most delightfully autistic response to the article. |
|
| ▲ | MichaelDickens 3 hours ago | parent | prev | next [-] |
| Isn't this a retcon? As I understand, autism was considered by many to be a spectrum in the literal sense, and the "colors" thing came later. |
|
| ▲ | yunnpp an hour ago | parent | prev | next [-] |
| Why are you "on the spectrum" for pointing out the correct use of the term? As far as I can tell, everybody else is on some spectrum of "idiot". |
| |
| ▲ | phantasmish an hour ago | parent [-] | | There's a whole genre of viral social media posts that amount to lumping anyone who appears to have cared quite a bit about something that's not obviously exciting (to most other people) into the autism spectrum. Especially historical figures. "This guy made tons of detailed beetle drawings and cataloged them in books! See, there have always been autistic folks, because he definitely was!" Like I mean maybe, but also he was a bored rich aristocrat before TV was invented, and sometimes there are no parties going on or everyone's hiding in their country estates because of a cholera outbreak or whatever, and "making shitloads of drawings and organizing them" was like 50% of scientific work at the time. So. Maybe he just had a lot of time to kill. Going by randos posting online, "liking things" and "knowing stuff" and "caring about things" are all autistic traits when present in any but the tiniest of degrees. It's ridiculous. |
|
|
| ▲ | ryandvm an hour ago | parent | prev | next [-] |
| It should just be called the "well actually spectrum". |
|
| ▲ | sfpotter 3 hours ago | parent | prev | next [-] |
| Fun fact: some spectra are discrete, not continuous! And some have both parts. Depends on the operator... |
| |
| ▲ | delichon 3 hours ago | parent [-] | | Autism researchers talks in terms of "graded membership" in "fuzzy clusters" within trait space. |
|
|
| ▲ | dooglius 3 hours ago | parent | prev | next [-] |
| I think the former is what they are trying to imply? |
|
| ▲ | cardanome 3 hours ago | parent | prev | next [-] |
| The more correct way is to think about it as a prisms. It is multi dimensional. Also it is for autistic people. It grinds my gears when people say "everyone is on the spectrum", no, just no. Again it is only for autistic people and you need to have support needs to be diagnosed with autism. You don't get a diagnosis for being quirky and a little weird. And no, just because someone is verbal and seems to be very articulate does not mean the person has low support needs or vice versa. |
| |
| ▲ | AnthonyMouse an hour ago | parent | next [-] | | > you need to have support needs to be diagnosed with autism. You don't get a diagnosis for being quirky and a little weird. The problem is the people who actually have support needs are often not in a stable job with great insurance, and then they don't have access to the "get an official diagnosis" machinery. At which point you have to choose between respecting a self-diagnosis even if they're often wrong, or not respecting it even if they're often right. | | |
| ▲ | cardanome 22 minutes ago | parent [-] | | Oh yes, absolutely. Self-diagnosis is valid. It is still important to get a official diagnosis if one can but yeah the reality is that it can be a very long process and not in reach for some people. |
| |
| ▲ | d1sxeyes 2 hours ago | parent | prev | next [-] | | I find this take quite challenging, although I know it is one shared by a lot of autistic people. I understand that if a person has no support needs, they cannot be diagnosed with autism. But that person may still be neurodivergent, and therefore to me it seems to follow that you have folks who are autistic with high support needs, and folks who are autistic with low support needs. Then, you have neurodivergent folks with no support needs. But this seems to me like a difference in degree, rather than category, and which would mean that the “spectrum” analogy works quite well. With a clear understanding that I am not trying to minimise the struggles autistic people face, a sincere desire to learn, and an open mind, would you mind trying to help me understand? | | |
| ▲ | cardanome 17 minutes ago | parent [-] | | Autism is something you are born with. It is simply who you are. Support needs can change over time. You can need less help because you learn better coping strategies and have a stable environment or you can need more as you get older. It is not fixed. Support needs are denoted in level because that is what system like schools and the like need. They don't really map to reality. Like for example a autistic person can have really bad sensory issues, being really sensitive to sounds, restricted diet and the like but decent social skill. Another autistic person might not have any sensory issues but really struggle with social stuff. Who needs more help? They need different kinds of help. |
| |
| ▲ | prepend an hour ago | parent | prev | next [-] | | Everyone is on the spectrum, but only some are diagnosed with autism spectrum disorder. So there’s a tipping point or dividing frequency in the spectrum that moves people into disorder. | | |
| ▲ | cardanome 11 minutes ago | parent [-] | | Having Covid is a spectrum from having nearly no or even no symptoms to having really bad symptoms. Just because everyone experiences having a running nose from time to time, does not mean everyone has Covid. Autism is not the only way your brain can be different from other people. |
| |
| ▲ | QuercusMax 3 hours ago | parent | prev [-] | | I guess it depends on whether you consider RGB(0,0,0) to be on the same spectrum as RGB(100,0, 100) or RGB(100, 150, 100). RGB(10,10,10) may be awfully dark but it's definitely not black. On the spectrum doesn't necessarily mean you have clinically relevant difficulties. | | |
| ▲ | cardanome 6 minutes ago | parent [-] | | The more helpful way to think about is that the neurotypical brain is like RGB(63.32, 12.3, 73.02) but with thousands or maybe millions of variables. If certain values are significantly lower or bigger it might cause you trouble. Having Autism is one cluster of values you can have. So is having ADHD. So is having Trauma. And many more things. And you can and often have multiple things at once and their symptoms overlap. |
|
|
|
| ▲ | Hard_Space 3 hours ago | parent | prev | next [-] |
| It seems a poor analogy, since it's impossible not to be on the spectrum somewhere, even if it's #000000. |
| |
| ▲ | Matticus_Rex 3 hours ago | parent [-] | | This is a misconception I see pop up frequently online. In terms of the color spectrum, there are plenty of things—even things that have qualities in common with color—that aren't on the color spectrum. And while there are colors outside of what humans can see, we generally use it not to refer to the entire electromagnetic spectrum, but only to the subset that makes up light visible to human eyes. Likewise, when we talk about the "autism spectrum," we're not including every exhibition of traits associated with autism. You can have some traits associated with autism without being "on the spectrum." Also, perhaps as importantly, "spectrum" isn't a term that generally applies only to color, or even electromagnetism. |
|
|
| ▲ | kube-system 3 hours ago | parent | prev | next [-] |
| And yet, colors themselves are arbitrarily chosen partitions of a spectrum. |
| |
| ▲ | bluGill 3 hours ago | parent [-] | | Not exactly - there are very clear areas where everyone agrees the dividing line exists when you look a full spectrum map. Even most colorblind will agree with the areas in general (there are lots of specific color blind types but most will agree what area of the map is which colors even if you don't put any scale indications on the map) | | |
| ▲ | QuercusMax 3 hours ago | parent [-] | | Within a particular culture that may be true, but for example the Japanese concept of blue/green is decidedly different from most Western concepts which consider blue and green separate colors. | | |
| ▲ | bluGill 2 hours ago | parent [-] | | Even then though we agree on the zones. | | |
| ▲ | kube-system an hour ago | parent [-] | | Until my wife and I are picking out home decor. Then all of a sudden nobody can agree on what color something is. |
|
|
|
|
|
| ▲ | raverbashing 3 hours ago | parent | prev | next [-] |
| The current shitshow was the result of several misshaps and naive thinking - Group together "rainman" type people (and people with even harder limitations) with "not overly social/minor social impairments" - The current overmedicalization and diagnostication of everyday life wanting to label every minor difference between people - Current "education was too hard, let's build accommodations" which is good but not when you can get any diagnosis by shopping for it |
|
| ▲ | renewiltord 3 hours ago | parent | prev [-] |
| Actually, the original word has nothing to do with continuity. That's a later adoption of it from Latin to English. So to be precise, you don't need continuity. It's just a re-adoption of the same word form the original Latin. But many without autism don't have that need for precision so they get confused by mixing up later word use in different contexts like you did there. |
| |
| ▲ | rusk 3 hours ago | parent [-] | | The present day meaning describes a continuum. The term could indeed be defined in the anachronistic terms you describe so it is anachronistic, which is a reasonable complaint when something enters common usage. We see terms redefined all the time thusly UPDATE I have exceeded my grace with HN spam controls The confusion arises from the direct import of a medical Latin term which means what it means in Latin, into the modern colloquial- this is important information | | |
| ▲ | renewiltord 3 hours ago | parent [-] | | Well, if one is being pedantic about a loanword one must admit the possibility of the word being loaned twice with different meanings. If one doesn't want to be pedantic, all manner of things are admissible, of course. |
|
|