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| ▲ | david_shi 24 minutes ago | parent | next [-] |
| Seems insane that profitability so heavily dictates what is researched and what isn't. |
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| ▲ | silisili 14 minutes ago | parent | next [-] | | I don't mean to disagree with you in spirit, but profitability is pretty closely entwined with probability. So companies are chasing solving problems that more people have, even if it's for the wrong reason. | | |
| ▲ | ehnto 5 minutes ago | parent [-] | | As the benefactor of an extremely rare disease, it's not exactly unfair when you look at it from a societal view. If you solve a higher probability problem, you are helping far more people. The real tragedy isn't the allocation of the resources we have spare, it's that so many of our resources are not spare because billionares and corporations have hoarded it. Without changing the percent of allocation, and only changing input resources by capturing it back from billionaires as taxes, we could be helping far more people including super rare diseases. |
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| ▲ | s1artibartfast 3 minutes ago | parent | prev [-] | | I find it makes more sense if you drop the corporate analysis and just think about people. Money motivates them and is why they go into hospitals or research labs instead of staying home with their family or friends. |
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| ▲ | Incipient 2 hours ago | parent | prev | next [-] |
| That's one reason why privatised health is rubbish. "profitable" treatments should be used, in part, to subsidise the cost of unprofitable ones. |
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| ▲ | Aurornis 2 hours ago | parent | next [-] | | No medical system, public or private, has infinite money. There will always be decisions made about which conditions get research and which don't. It's unlikely that a disease this rare would be prioritized by a purely government run system, either. There are too many more common diseases to address first. | |
| ▲ | renewiltord 2 hours ago | parent | prev [-] | | I frequently tell people this. We can solve so many illnesses cheaply. Instead we should charge a lot of money and spend that money on things like haemophilia that affect a few people. Imagine a world where the flu vaccine and COVID-19 vaccine cost $1000 each shot. We could mandate it and then the enormous profits we make we could dedicate to things like this family's illness. All we need is for the government to take control and jack up the prices and then to make it illegal to not get the flu shot. | | |
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| ▲ | yieldcrv 2 hours ago | parent | prev | next [-] |
| > diseases that wouldn’t be profitable for pharmaceutical companies I remember when that observation was discredited as a conspiracy theory |
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| ▲ | wat10000 2 hours ago | parent [-] | | I’ve never seen that discredited. Are you confusing the obvious fact that they won’t pursue unprofitable drugs with the much more dubious idea that they won’t pursue profitable cures because ongoing treatment is even more profitable? | | |
| ▲ | Aurornis 2 hours ago | parent [-] | | The dubious idea is that eliminating private medical care systems would open up a world of research into treating very rare conditions with high R&D costs. If this was true, why wouldn't all of the countries with socialized medicine be doing it already? | | |
| ▲ | paulryanrogers an hour ago | parent [-] | | The US already was, and to since extent still does. Same in the UK and other parts of Europe. Government funds a lot of medical R&D. Thank them for the fundamental research that lead to the COVID vaccine. |
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| ▲ | wjxgxey 2 hours ago | parent | prev [-] |
| pfft just illusion of control theatre for people who are scared of death. Throw in some opportunists exploiting it. Just watch what happens if there are unintended side effects. Its okay to die guys. Everyone does it. The sky doesnt fall. |
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| ▲ | silisili 5 minutes ago | parent | next [-] | | As much as I love this forum, the one thing I learned to never say is that it's normal and even good that people die (usually on threads about people trying to live forever). I've never received such hateful responses on any other topic. | |
| ▲ | david_shi 22 minutes ago | parent | prev | next [-] | | If everyone had this attitude we'd still be dying of tuberculosis and countless other diseases. | |
| ▲ | zdragnar 2 hours ago | parent | prev [-] | | Dementia is a terrible way to go, both for the people who get it and for their loved ones who are with them. One day, my grandmother forgot English when my uncle was visiting and kept speaking in her native tongue and got so mad because nobody understood her. That was one of the few amusing anecdotes from get decline. The rest are just depressing. Watching your father cry because he went to the hardware store and couldn't remember how to get home and had to ask an employee to call his family for him, for example, was particularly tough. | | |
| ▲ | wjxgxey 2 hours ago | parent [-] | | You know why that happens? Because the health care system slows natural decay rate of some subsystems (via pills/surgeries etc) while having nothing to offer for other subsystems. So rather than all subsystems decaying together we produce this mismatched state. | | |
| ▲ | zdc1 an hour ago | parent | next [-] | | You can't really blame the healthcare system for this. Alzheimer's and Dementia existed before modern medicine. The reality is that many fit, active, and otherwise healthy people will hit their 60s and 70s and will experience cognitive decline and Alzheimer's. | |
| ▲ | temp_praneshp an hour ago | parent | prev [-] | | That's the response you have to the parent's anecdotes? I hope that one day you are not sad and angry anymore. |
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