| ▲ | silvestrov a day ago |
| > new folder on my Mac, and after appointments I’d dictate what happened and what the doctor said I cannot recommend this enough, including writing down almost every day about symptoms and progress. I didn't have cancer, something else, but it was very valuable to be able to go back and see exactly how long time a symptom has been present and when it disappeared. Doctors also seem to react well to being able to be precise in descriptions of what happened when. |
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| ▲ | BrokenCogs a day ago | parent | next [-] |
| That's because the baseline response doctors are used to goes something like this: Doc: "Do you have any other medical conditions besides your {red eye,stomach ache,itchy foot}?" Patient: "No." Doc: "Are you taking any meds?" Patient: "Yes I am currently on chemotherapy for my cancer." Doc: "Okay... so you have cancer?" Patient: "Yes I have lung cancer." |
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| ▲ | djeastm a day ago | parent [-] | | What are we all filling out those forms before the visit for if the doctor's not even going to read them before we see them? | | |
| ▲ | 1718627440 a day ago | parent [-] | | A doctor is supposed to do an anamnesis each time it might have some consequences. This is not because they are stupid, or thing you are. People simply have error rates. Just because he wants to hear everything again from the beginning, does not mean he hasn't read your file. He want's to make sure, nothing got lost or forgotten including by the patient himself. And he is actually supposed to do so, if he doesn't that's bad practice. |
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| ▲ | tredre3 a day ago | parent | prev | next [-] |
| > Doctors also seem to react well to being able to be precise in descriptions of what happened when. They do. In my experience they're usually pleasantly surprised when you have dates and timelines rather than "oh I don't know, about a year ago?" That being said the reaction differs if you offer a self diagnosis (assisted by google or chatgpt) rather than just symptoms. There will not be pleasantness. It's a toss up between a dismissive "yeah maybe" and "uh uh, did google tell you this?" Many doctors will 100% listen and consider what you say, but in my long life I've learned that offering a self diagnosis must be done very tactfully. On one hand it's understandable, us as programmers don't enjoy having a nocoder arrive with "yeah so chatgpt says this is no good" and having to explain to them why they're wrong. On the other hand modern patients do their own research before consulting, so it's worth at least considering what's being said. |
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| ▲ | igregoryca a day ago | parent | next [-] | | I usually listen to what doctors have to say, and trust their judgment. Especially since I have next to no formal education in bio or medicine. I did resort to "self-diagnosis" once, though: for R-CPD (no-burp syndrome). Most doctors simply don't know this condition exists. I brought it up with my GP (whose referral I needed to see a specialist in Ontario), prepared for some pushback, but was pleasantly surprised that he did some brief research and then helped me forward. Then again, I may have been lucky. I still hear stories of doctors who are less than cooperative when patients bring them "self-diagnoses", even for something as open-and-shut as R-CPD. But if most of those "diagnoses" are BS, then I can empathize with the docs, too. | |
| ▲ | prmph a day ago | parent | prev [-] | | I usually just try to give them a detailed picture of my symptoms, as far as I can, and listen to them. When it seems like they are getting ready to wrap up, I simply bring up my concerns, if they have not been addressed. The attitude should be one of seeking their reassurance that they have adequately considered more serous possibilities. It does not always work, but a lot of doctors in my experience take some time to kindly explain why they think the other possibilities I'm concerned about are unlikely, and sometimes my questions actually prompt them to add some additional investigations. | | |
| ▲ | dekhn a day ago | parent [-] | | This is exactly correct- you have to sort of pretend to be passive and let them come to conclusions first, then sort of question it logically. One bad side effect of coming in with your own self-diagnosis is sometimes they will index on that and stop considering other possibilities they would have suggested if you hadn't primed them with a diagnosis. |
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| ▲ | clemencello a day ago | parent | prev | next [-] |
| Record the conversation and have it transcribed by your a.i of choice. I found a.i does a better job of distinguishing voices and assigning names "Doctor" "Patient" to the conversation and so on. Never asked about this and I use it to potentially save my life so ready to (not) die on this hill. I use Gemini Notebook and stuff the sources with all my history, all my test results and links to articles, YouTube videos anything that looks of use. Get Gemini to produce a precis of where you're at and make comments and recommendations at each stage. Producing graphs and graphics can make things stand out. You need to make sure you know your condition and results so you can check for accuracy. This approach saved me from the default treatment options and has prompted oncologists to consider others that might not have come to mind otherwise. |
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| ▲ | arjie a day ago | parent | prev | next [-] |
| I have a private EMR system and we plug in everything into it through an agent. Every medication, every sniffle. It’s fun! |
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| ▲ | coffeefirst a day ago | parent | next [-] | | That’s one of the more interesting personal apps I’ve heard about in a while. Can I ask how you have it set up and what you like about it? | | |
| ▲ | arjie 10 hours ago | parent [-] | | Yep! It’s pretty simple. Just dates, events, records with some loose links between them. Charting for the kids’ growth, and our blood test results and prescriptions, vaccines, and so on. It’s primarily hooked up to our personal agent over LAN so we just say X and Y happened. And I pull records from my chart etc using the data export periodically and use an importer. If I’m being honest, it’s more that it scratches my itch to document than that it is useful. |
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| ▲ | a day ago | parent | prev [-] | | [deleted] |
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| ▲ | DannyBee a day ago | parent | prev | next [-] |
| Get one of these: https://www.plaud.ai/ You can do whatevvr you want with the audio files - have them transcribe them, summarize them, hand them to an agent, upload them to your cloud, whatever. The standby and talk time is really great on both the pins and the credit card sized versions. I have a lot of friends that now use them with elderly parents/their own medical care when they need to really be able to have something automatically record/transcribe the visits. |
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| ▲ | iamjackg a day ago | parent | next [-] | | Is there a completely local option for something like this? I love the idea, but I don't love having yet another middleman in between everything I say and the model provider of my choice. | | |
| ▲ | DannyBee a day ago | parent [-] | | Device wise - i never found one as good and i played with a bunch.
However, you have three options with plaud that i'm aware of: 1. If you want something totally open source: https://github.com/RemiPelloux/OpenPlod Local-first Plaud Note Pro recording vault, transcription, and Markdown workspace. Which sounds like what you want. 2. the Plaud SDK will let you pull from the device and send it wherever you want without touching their servers. 3. You can also use the mobile app, disable cloud sync, and export each audio file as mp3/wav to your phone/tablet/whatever if you don't want to use #1 or #2. You can have it upload to your private cloud without doing any of these, but it still transits their servers first i believe, which it sounds like you are trying to avoid |
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| ▲ | ButlerianJihad a day ago | parent | prev [-] | | No, do not ever do this. In the USA, providers are openly hostile to being recorded. You had better ask at the front desk if you can record anything first. They will tell you no. If you covertly record, then they have every right to refuse you service and eject you from the exam room. Do not ever record anything independently with your provider. They are absolutely hostile to this and there is no getting around it. They will tell you that it is a violation of HIPAA. It is actually a violation of CYA. Providers do not appreciate having any independent record of one-on-ones that they cannot repudiate themselves. If they didn't document it, it didn't happen. Don't record providers. | | |
| ▲ | DannyBee a day ago | parent [-] | | What are you talking about? This is done all the time, and is quite common, particularly when care is shared between multiple people or people are elderly 16% of all appointments are recorded by patients, and the number is increasing all the time. It's up like 20-30% year over year. Only 3% of those recorded are done covertly. Basically all medical associations have issued guidance on this and the guidance is not "kick people out of the office" I have never once had a provider become hostile or care.
Nor has anyone I know.
People record with phones, dial people in, etc. This is across like 10+ states, tons of conditions, ages, and hundreds of people. While you may have had a different experience, i dont' think i would go with "don't ever do this". It's happening in almost 1 in 5 appointments, and increasing all the time. | | |
| ▲ | LtWorf 17 hours ago | parent | next [-] | | The account is a bot. | | | |
| ▲ | ButlerianJihad a day ago | parent | prev [-] | | My state, Arizona, is a "one-party recording" state. I don't need to notify or inform anyone else that I am recording, because I am the one party. I have interacted over the phone with two major clinic systems who have busied out my line and hung up on me, just because I activated Call Recording on my Pixel. You try it. Telephone your clinic/hospital and activate Call Recording, and see if they will still even stay on the line with you. Notify the human who answers, and see what happens. This was not merely a human decision; it was the clinics' automated system countermeasures vs. recording a simple, normal phone call. I was also reprimanded for recording at my psychiatrist's clinic. Then they posted signs that said that all recording, photos and videos are strictly prohibited. When I asked at an independent Urgent Care facility, the front desk flatly refused. She insisted it was a HIPAA violation. It is not. |
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| ▲ | Hamuko a day ago | parent | prev [-] |
| >Doctors also seem to react well to being able to be precise in descriptions of what happened when. They also do that if you show them pictures of your poop when you have a bowel thing going on. |
