| ▲ | coldpie 2 days ago | |
> Is this a common experience or do I just have to be better at tracking? I don't know anything about your illness, but I have Type 1 Diabetes, which is a pretty high maintenance chronic illness. Many T1Ds put a lot of effort into tracking their daily numbers and routines. For example, see all the settings in this popular third party continuous glucose monitoring app[1]. It does all sorts of tracking and monitoring and giving you feedback. My cousin is also T1D and uses some similar app to manage all this stuff, always putting in all her injections and food intakes and CGM data and using that app to make predictions and judgments. It's very useful for her. I've tried these a couple times and they just don't work for me. I'll keep up with it for like two days and then skip a few entries and then just stop. I think part of it is, I just don't find the output from all that input very useful. I've been diabetic for more than 20 years so I'm just kinda good at it and don't get much reward for all that effort. But also my personality is very detail-oriented and my daily routine is pretty stable, so for me personally, I just don't get the value from all the tracking that people with other personalities do. So I guess for your situation, I would ask what you expect to get out of all this effort. Find a way to make the amount of effort you have to put in match the amount of value you want to get out of it. If it requires a ton of effort to do all this tracking and all you get out of it is a couple of charts that you don't care about, then maybe your particular situation doesn't justify spending that effort. If you do actually get some value out of it, but the effort is still too high, then maybe you can find a way to reduce the amount of tracking effort, even if the actual fidelity of the end results is somewhat lower. Just some ideas from my parallel perspective. Good luck, chronic illnesses are a never ending adventure. [1] https://navid200.github.io/xDrip/docs/Settings/MainSettings.... | ||
| ▲ | Abh1Works 12 hours ago | parent [-] | |
Thanks for your perspective. I find these threads really useful especially because alot of the people Im around have never given a thought to chronic illness in general. I think theres just so many things that I feel, and so many small things I do throughout the day, that I feel there should be a connection or unique insight somewhere in order to make my diagnosis or care journey better. So granted, my expectation is really open ended. For something like diabetes (where there is a specific marker to track, this is different), but for seronegative im always second guessing what caused this flare or when did this part start hurting. This being said, thank you! | ||