Its done substantially better than more common diseases like ME/CFS which very few have even heard of let alone know the symptoms of and receives almost no funding at all. Alzheimer's received a further $100 million of NIH funding earlier this year (https://www.alz.org/news/2026/100-million-dollar-alzheimers-...). That is 6 times the total funding for ME/CFS federally which is currently just 15 million and planned to decline.

The research went awry in Alziemer's due to fraud but its being funded at a reasonable level, a level many with Long Covid or ME/CFS or Fibromylgia would be very happy to see but doubt will ever happen. Funding of diseases is not "fair", it isn't based on number of sufferers * quality life years lost and we should be spending more on medical research generally. Alzeimers is one of the better funded diseases in the world.

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IanGallacher 9 hours ago | parent | next [-]

It is a crime and a tragedy how criminally underfunded ME/CFS is.

I'll probably be downvoted for this, but I honestly think quality of life of CFS is lower than Alzheimer's.

I truly wish that disease funding was based on science and metrics rather than marketing and vibes.

That being said, Alzheimer's absolutely deserves it's funding and it is very sad to see setbacks related to fraud.

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avazhi 12 hours ago | parent | prev [-]

No clue why you think chronic fatique syndrome and dementia ought to be treated as equally debilitating or serious by the medical community, but I'm sure you're the only person on this earth who holds that opinion.

Naturally, the far more terrifying and inexorable disease that is incurable and robs people of their entire personality and will affect most of us to some extent (dementia, if not Alzheimer's specifically) by the end of our lives gets more funding and attention, as it should. The way Alzheimer's has been researched and funded is diabolical, though, but you might pick any other of 200 serious progressive neurological disorders that are underfunded and underrepresented over... CFS. CFS isn't even fully accepted as a syndrome at this point - long COVID is probably more accepted as a real thing by practitioners at this point than CFS.

	▲	klipt 12 hours ago \| parent \| next [-]
		> long COVID is probably more accepted as a real thing by practitioners at this point than CFS Isn't long covid just CFS that can be attributed to Covid? If you accept that multiple viruses can cause "long <virus>" syndromes, of which long covid is just one example, it's plausible that CFS is really a cluster of syndromes, one category of which is these post viral syndromes. We just can't pinpoint the virus behind it every time because most viruses haven't been studied as much as Covid has.
	▲	s5300 11 hours ago \| parent \| prev [-]
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