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scotty79 5 hours ago

That kind of data should be public anyways.

alt227 4 hours ago | parent | next [-]

Yeah, as long as all 500,000 people in the data set agreed for it to be public then thats fine. But how do we verify that?

Ylpertnodi 4 hours ago | parent [-]

They're on the list, their information is out there. Isn't that what 'opt in' means?

subscribed 3 hours ago | parent [-]

That's a quite.... astonishing* take.

If I leak your medical information you confidentially shared it with your doctor that means you are okay with it because you opted in for that?

Or does the scope / details do not matter for others, but only matter for your data.

*I have much better word but I guess I should say it.

subscribed 3 hours ago | parent | prev | next [-]

But it's nonconsensual, contrary to the laws and contract.

Should or shouldn't in general, but THIS one database shouldn't.

PunchTornado 4 hours ago | parent | prev [-]

When i signed up as a volunteer they assured me it was not going to be public, only veted researchers allowed to access it.