I commend you for speaking openly about Peyronie's, I imagine that isn't always an easy thing to do (or to deal with). Best of luck, and I hope you manage to make progress with it. Effective treatment wouldn't get as much airtime as effectice cancer treatments, but it would certainly have a positive effect on the lives of millions of men.

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appstorelottery 3 hours ago | parent [-]

You are right on the mark. What triggered me was the slide in Sid's presentation: "Assessing Fibroblast Content of Tumor". Peyronie's is all about Fibroblasts. I actually typed my reply quite a few times, deleting mention of Peyronies and retyping it. It's a shameful condition for me, and I realize that I have to get over this. Peyronie's affects 1% to 20% of men, primarily because it's (if you're anything like me) - is impossible to talk about.

Again, you're completely right. Talking about the disease is the first step.

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girvo 2 hours ago | parent [-]

It’s not quite the same, but I had a frenulectomy done due to severe phimosis leading to pain and bleeding. It was absolutely horrible, and I was shocked at how hush hush we all treat conditions like this.

Thankfully there’s a straightforward surgical treatment for it, and I hope that you’re successful on your quest around Peyronie’s!

	▲	emerongi 44 minutes ago \| parent \| next [-]
		This reminded me of my own story, when I was 15 and had phimosis. I was embarrassed to talk about it with anyone, so in my desperation I posted about it on a forum that claimed to help kids in need of help. Someone responded and gave me instructions that they claimed had a high success rate at treating the condition. I followed the instructions for a few months and it fixed it. I went back and sent the biggest thanks to the responder. I did not expect to get any help from a random forum. There has to be swathes of kids struggling with "embarrassing" (in quotes, because they actually aren't embarrassing at all) issues like this. I hope today's internet can provide help to the ones that have nobody to discuss them with.
	▲	appstorelottery 2 hours ago \| parent \| prev [-]
		I had to google your condition to empathize, but wow - terrible. I'm truly happy for you that you could solve it! Thanks for your best wishes!