You will be assigned an individualized risk figure that will determine whether or not you are given coverage and treatment. Those decisions will happen without you or any MDs involvement. You will never know it happened and it will follow you for the rest of your life and your children's lives.

If they are willing to exert this level of indiscretion with privately sold data, I don't see why they wouldn't just use black market PHA in the absence of availability of the former.