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guerby 7 hours ago

I found this video interesting on understanding what type 1 diabetic management looks like:

https://www.youtube.com/watch?v=uHaYPEDGaro

Beth McNally & Amy Rush - 'TCR in Practice: Navigating Insulin for Protein & Fat in Type 1 Diabetes'

At the end of the video there is some strategies described with automatic pumps.

And the graph a t=174 is kind of eye opening:

https://youtu.be/uHaYPEDGaro?t=174

phasetransition 7 hours ago | parent | next [-]

Our almost 5 year old has had T1D for two years. We ended up going the way of a controlled lower carb diet for our entire family. Other than the greatly increased cost to eat this way, it has been transformative for diabetes management of our son, the amount of sleep we get, and the lessened risk of aggressive lows.

We've managed to keep our sons A1C in the 6-7% window after we changed our diet to be heavily carb controlled.

guerby an hour ago | parent | next [-]

Great work!

A researcher with T1D and present online:

https://andrewkoutnik.com/ https://x.com/AKoutnik/

Interview:

https://www.youtube.com/watch?v=CG8UU7P8FBU Can Keto Transform Type 1 Diabetes Treatment? A Decade of Insights from Dr. Andrew Koutnik

layla5alive 4 hours ago | parent | prev [-]

That sounds like great family teamwork. I wish my partner would entertain changing their diet to accommodate this (I've asked). I imagine the challenges of life are slightly more tractable when you genuinely deal with serious adversity as a family unit.

I understand it means an extra burden for all; but to me, voluntarily doing something challenging together for a family members' benefit seems preferable to facing each adversity largely independently.

As an aside, while likely much better than uncontrolled, 6-7% A1C still seems on the high end for lifelong. You probably already know this, but exercise immediately after carbohydrate consumption can also help - e.g. family walk after dinner (another thing my partner isn't interested in)

slowking2 4 hours ago | parent [-]

Although it's possible for someone with type 1 to have an A1C below 6%, it's very difficult. I've known a few people like that, and they are all super users. It's also going to depend somewhat on the lab running the A1C test, personal biology (A1c is not only affected by blood glucose levels) etc. 6-6.5% is superb control! Parent should be very proud. 6.5-7% is still very good, I haven't looked at the distribution of A1c's for T1D recently, but that would be much better than median which I think is above 8%.

Especially with kids, it's difficult since you don't control how much they decide to eat making pre-bolusing meals challenging (part of why reducing carbs tends to be helpful for people is it reduces the need to pre-bolus and makes it less risky since you need less up front meal insulin).

layla5alive 3 hours ago | parent [-]

I didn't mean to say it's not superb control for someone with T1D, only that there are likely still some negative health consequences at 6-7%, and that exercise after carbohydrates is one mechanism of potentially getting some additional marginal improvement.

kelseyfrog 7 hours ago | parent | prev [-]

Non-diabetic who's interested in bio-feedback here. The GI graph is indeed dramatic[1].

Equally dramatic, in my experience, is the effect of exercise in modulating glucose spikes. It quickly became apparent that if I walked or worked out at the gym within 30mins of a meal, dGlucose/dt and subsequently max glucose would be dramatically reduced. Eventually, I got into the habit of planning exercise post high-GI meals as a way eliminate spikes.

It was an effective weightloss strategy for me as opposed to strictly a glucose regulation method and a positive experience as a whole as I got to develop an intuitive understanding of a physiological process I had only a theoretical understanding of before.

1. It would have been nice to see a labeled abscissa[2][x-axis].

2. https://en.wikipedia.org/wiki/Abscissa_and_ordinate

layla5alive 4 hours ago | parent [-]

+1 I do the same (and when I don't, I can feel the difference, which is generally very unpleasant).