| ▲ | nerdjon 3 hours ago |
| I will admit that I stopped reading the article because I think the article is completely mixing things up and honestly just did not feel like reading anymore of it. I think very few people actually consider it a single condition. To the point that most people that I know, including myself, say that we are "somewhere on the spectrum" or some variant of that. This isn't a post diagnoses understanding either, it is well understood by anyone I have talked to about this in the last 10ish years? (maybe less, I cant really pinpoint that). While I feel like there is value for professionals to be more specific about it, from an everyday person prospective I feel like "Autism" is well enough understood to be not just a single thing. Enough so that some phrasing along the lines of "my tism is..." is somewhat commonplace. The real problem is anti-science people joining the conversation, but splitting up Autism is not going to change that. Edit: To be very clear here I am not trying to say that most people in general are saying "I am somewhere on the spectrum". I am saying that most people I know which a larger portion of the people I regularly talk to are also diagnosed. |
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| ▲ | tokai 3 hours ago | parent | next [-] |
| Understanding autism as a spectrum does not at all imply that its multiple conditions. Just one with varying severity. |
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| ▲ | phito 3 hours ago | parent | next [-] | | It's not a one dimensional spectrum with just severity as variable. It's a multi dimensional spectrum, you could potentially assign a "condition" to each dimension (hypersensitivity, OCD, rigid thinking, non-verbality, ...) | |
| ▲ | Matticus_Rex 3 hours ago | parent | prev [-] | | But virtually everyone in the field does believe there are many different mechanisms behind autism, some of which have little-to-no overlap either in the mechanisms themselves or necessarily even in the presentation. Many scientists believe that one day we will likely be able to split off at least some of the undifferentiated mass of ASD into potentially completely unrelated disorders that may share a lot of aspects of presentation. For example, we may find out that one set of genes combined with cytokine storms in utero cause dysfunction in synaptic pruning, while another set of genes combined with gut dysbiosis may affect brain plasticity in the critical period of early childhood. Those would be two completely unrelated conditions, with overlapping symptoms for some (but not all) who have them. |
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| ▲ | bluGill 3 hours ago | parent | prev | next [-] |
| The reason we say "somewhere on the spectrum" is there are a lot of high functioning people who have a few autism like symptoms that benefit from some autism treatments. You can change the name/diagnosis what you want, but in the end we need to get people the treatment they need. |
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| ▲ | cogman10 3 hours ago | parent | next [-] | | That's the benefit of a broad diagnosis. Narrow diagnoses make it hard to get specific treatments for problems. That's my main concern about trying to split up autism. It's all well and good for study purposes, but for "can I get my insurance to pay for my kid's occupational therapy" purposes I'm really skittish about such a breakup. All the sudden my kid might have "omegaism" or whatever and boom, it's uncommon for them to need OT so insurance won't cover it. | | |
| ▲ | phito 3 hours ago | parent [-] | | That's exactly my issue with "autism" because it feels like lumping a bunch of things together just for the sake of simplifying health care. Meanwhile you have a bunch of people that have completely different symptoms, experiences and causes with the same diagnostic. | | |
| ▲ | cogman10 3 hours ago | parent | next [-] | | The vast amount of treatment for autism is therapies. It really doesn't matter if the underlying cause is very different in terms of treatment because a speech therapist works the same with a kid with autism as they do with a kid with down syndrome. If there were more pharmaceutical interventions then I might care a bit more. But there's just not. In terms of the research, the researchers already have tools to sort and filter individuals based on their specific set of symptoms. Just because 2 people share an autism diagnosis doesn't really impact the research. What objection do you have other than not liking that it's not a "pure" diagnosis? | |
| ▲ | mrguyorama an hour ago | parent | prev [-] | | It's lumping a bunch of things together because they are empirically linked together People with sensory issues often also have more cognitive rigidity for example. Autism, and many other psychological disorders, are quite literally just a lump of symptoms and presentations, because we do not have better options. Sure, it makes navigating american health insurance easier if you can just say "Autism" and get various treatments paid for, but very similar diagnostic criteria and definitions are used in countries with fully socialized medicine. Those people with those linked issues tend to benefit from similar treatment, and that's the entire point of a diagnostic criteria. All the complaints come from people who seem to just not like the vibe of that? Deal with it. Go fund more research into the heritability of neurodivergent pathologies if you want a blood test. Some day we WILL be able to separate "Autism" into very specific diseases with specific causes, and some of those causes will have a genetic test. Unless we kill the concept of medical research because we elected morons who tear apart our institutions. I have "Impaired vision", and I share that with people who are profoundly (but not totally) blind, and it does not matter that I can drive with glasses and they can't, and the name of that condition is not the important part. All this handwringing about "but but but my mildly autistic son is mostly functional and I'm sad that he has the same name of condition as someone who cannot be educated past a 3rd grade level" is stupid. It does not benefit anyone struggling with autism to complain about it. Are you aware that we have multiple medical conditions called "Palsy"s, and that they have drastically different causes and effects, such that my sister's Palsy which was caused by medical malpractice and prevented her from using her dominant hand in some cases is very different from my schoolmate's Palsy which left her wheelchair bound and requiring professional help day to day? They are both palsy because they are (partially) movement disorders stemming from nerve damage or dysfunction. The horror! |
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| ▲ | staticman2 3 hours ago | parent | prev | next [-] | | The diagnostic criteria isn't based on whether the condition is treatable. For example, nobody who is diagnosed with autism is proclaimed "not autistic" if they find therapy to be unhelpful. | | |
| ▲ | bluGill 7 minutes ago | parent [-] | | Yes, but the whole point of diagnosis is we have treatments for those things that usually [sometimes] work and so we need to diagnosis people because that is the first step in getting them treatment. |
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| ▲ | SoftTalker 3 hours ago | parent | prev | next [-] | | If a person can take care of himself, hold a job, and generally not burden anyone else why does he need treatment? To try to make him into whatever we consider "more normal?" Just let him be who he is. | | |
| ▲ | Lendal 36 minutes ago | parent | next [-] | | It's a personal decision. I haven't gotten a diagnosis because I've been able to hold a job for many years, and I'm married, so I'm mostly fine. But I have spent my life avoiding most human contact, precisely because I know I'm incompatible with them, and people often want to know why I never leave the house. I don't think there is any treatment. I think it's just a set of skills that you learn in case you want to try to pursue activities that most neurotypicals take for granted. It seems like a lot of work to me, and maybe it would be easier to just let things be, as you're saying. I know what my limitations are and I can observe others doing the things that I can't do, including my own wife, and I imagine what life would be like if I could do those things too. But it mainly boils down to having FOMO, and thinking about how much work you want to go through in order to be able to do some of the things that you're having FOMO about. | |
| ▲ | cogman10 2 hours ago | parent | prev | next [-] | | The entire point of diagnosis is because a person needs help. The point of treatment isn't to "fix" or "make normal" someone. It's to give them the tools needed to participate. For example, someone with autism might be more prone to having a meltdown. What therapy does is give them the tools to both identify that they are on the verge of such a meltdown and to de-escalate themselves. The point of treatment is to help someone take care of themselves, hold a job, and generally not burden anyone. It's also to help a person feel better about themselves. | |
| ▲ | abigail95 an hour ago | parent | prev | next [-] | | The diagnostic criteria would exclude someone from an autism diagnosis unless they had persistent deficits across time and context. Your example person may function well within a narrow band of capability - the purpose of treatment/support is to expand that band and help maintain it. I'm not advocating forcing support on someone that doesn't want it, but I am for improving someones quality of life by expanding their choice of occupation and social environment. Without any external support I would wake up, work, sleep, repeat. Eating? Cleaning? annoyances that just interrupt work. I've made a lot of money doing that but it's unfulfilling and at times, disgusting. If you want to live in a society that leaves me be - I won't starve to death but I'm never going to have a partner or a family without external services like psychology, occupational therapy, social events. Whether I pay for these services or someone else does it doesn't matter. I want them to be available for people like me to understand that we are not alone, there's a reason we can only exist comfortably in our narrow slice of the world, and if we want to leave our bubble there is support available. | |
| ▲ | bluGill 2 hours ago | parent | prev [-] | | Is that person happy? Would/could they be more happy? |
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| ▲ | nerdjon 3 hours ago | parent | prev [-] | | So... you agree with what I am saying? My point is, if it is commonplace to refer to Autism as a spectrum we are already acknowledging that it is not a single thing. Which seems to be the entire basis of this article while also mixing in the rambling of someone anti-science that frankly won't change even if it was split up. | | |
| ▲ | bluGill 3 hours ago | parent [-] | | I don't know enough above the subject (and what I could make of the article isn't helpful) to know if I agree or not. We should split Autism if we can conclusively separate people into the different diagnoses and then give them the correct treatment (which would be wrong for the other). However if we still give the same treatments in the end there isn't any point even if we can find different symptoms to result in a different diagnosis. As science learns more (or I learn more) I reserve the right to change my position. |
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| ▲ | jklinger410 3 hours ago | parent | prev | next [-] |
| > I think very few people actually consider it a single condition. To the point that most people that I know, including myself, say that we are "somewhere on the spectrum" or some variant of that. Couldn't disagree more. The "autism is my super power" movement is borderline offensive to people dealing with severe or low functioning autism. Dismissive, uninformed comment. |
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| ▲ | squigz 3 hours ago | parent | next [-] | | ??? In what way is GP being dismissive, or taking the "autism is my super power" position with that comment? | |
| ▲ | mystraline 3 hours ago | parent | prev | next [-] | | > Couldn't disagree more. The "autism is my super power" movement is borderline offensive to people dealing with severe or low functioning autism. I doubt those types are saying much of anything. Its more likely their caregivers. Again the old name for those of us who think its more a super power used to be called Aspergers syndrome. https://en.wikipedia.org/wiki/Asperger_syndrome . And we got folded in to Autism Spectrum Disorder, as did a whole host of other diagnostics. And we have been found to be more truthful, better at focusing, can hyperfocus, notice more details than NT's, and plenty more. We're only a disease cause we're the minority. | | |
| ▲ | alphager 3 hours ago | parent | next [-] | | It's not a disease, it's a disability. As someone with a diagnosis, I would add several sensory issues (for me it's noises, multiple conversations at the same time, stickiness, physical contact, whole categories of food and several others) and several social issues to your list of superpowers. Seeing it purely as a positive is insultingly reductive. To be clear: I would not take a cure if it somehow got invented, but it /is/ limiting in a multitude of ways even in the best cases. | | |
| ▲ | mystraline 2 hours ago | parent [-] | | I only have so many comments before idiotic rate limiting. But I'll comment here. So for dis-ease or dis-ability, it doesnt interfere with ease of life. Nor does it materially affect my ability. > I would add several sensory issues (for me it's noises, multiple conversations at the same time, stickiness, physical contact, whole categories of food and several others) and several social issues to your list of superpowers. And too true. I have some as you listed as well. However, I also figured out what causes them in me, and how to reduce their effects to nil. In a way, its self-treatment with n=1. Noise: I dont have a problem with noise per se. However, when multiple people are talking or music with lyrics are on in the background, its incredibly hard for me to process what's spoken along with it. Weirdly though, when I was principal clarinettist in a symphony, I could easily pick out any instrument by simple concentration. All I know is the noise issue with me is something with vocal processing of over-talking voices. stickiness: for me, its dirt on my hands. Or chicken/turkey/beef/pork/lamb/goat blood. I do a lot of cooking. I hate those feelings on my skin. But I find that as long as I wash my hands before and after with a good degreasing soap (Dawn), the icky goes away. I can still do the task at speed. I dont have the physical contact issues for people I'm close with. So, thats not an issue. Food: theres only a few foods I can't eat, due to vomiting reasons. Tapioca based products are the big one. Aside from that, I eat everything from blue cheese, to cow tongue, offal from beef and birds,ghost peppers, pork brains, hakarl. I like the tastes and sensations that foods have. In a way, I'm wondering if this is also relayed to the supersensitive reject-foods type. Definitely not a disability. And of course, theres the huge downsides with interpersonal interactions. Took me decades to really piece together and emulate and identify emotional state in others. But the psychologists dont know how to fix this either. Most of them are NTs who it comes naturally. But they want their indefinite sessions to do basically nothing but pay $200/hr. > Seeing it purely as a positive is insultingly reductive. Again, there are up and downsides to NT's and ND's. Neurotypicals are more known for deception and lying. Or they use the term "little white lies". These things slowly stack up in NT conversations until they become huge problems. Sitcoms are based on this. But ND's, well, we are the weird ones. When someone asks "do I look good in this?" And you say "no, it clashes with your skin tone" - you were supposed to know they wanted a yes. I feel sad that NTs can't properly hyperfocus, and can easily drop out of hyperfocus with low sensory input. NTs memory is foggy and badly reorders things. Or they misremember and blame others for ill-perceived issues. There are good and bad. I'm glad I'm ND, likely Aspergers (hence autistic). Most of these problems are ones that can be solved, at least for Aspergers side of things. |
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| ▲ | jklinger410 3 hours ago | parent | prev | next [-] | | > I doubt those types are saying much of anything. Its more likely their caregivers. It doesn't really matter whose saying it. The point is that autism is not cool or fun for many people. We need a way to distinguish the difference, besides saying high or low functioning. > We're only a disease cause we're the minority. WHICH WE ARE WE TALKING ABOUT THEN? IS IT NOT A DISEASE WHEN SOMEONE IS NON-VERBAL? Holy shit. Point, meet case. | | |
| ▲ | mystraline 3 hours ago | parent [-] | | I immediately started with 'Aspergers was folded into autism spectrum disorder'. I dont think they ever should have did that. If the doctors say that "someone is nonverbal, pisses their pants, and needs spoonfed at 17yr old" is somehow the same as "someone who is a professional engineer who can hyperfocus but misses social cues and says weird stuff" - the doctors are completely wrong. Those are demonstrably NOT the same thing. And yes, my Aspergers is a super power. Those abilities (many positive, some negative) have gotten me far. | | |
| ▲ | jklinger410 30 minutes ago | parent | next [-] | | Then we agree that autism should be comprised of several named and distinct "disorders." | |
| ▲ | staticman2 2 hours ago | parent | prev [-] | | The diagnostic criteria for "Aspergers" never required above average, or even average intelligence. If you had visited the Aspergers and autism website support forum "wrong planet" 20 years ago you'd have seen many lower functioning than you people with "aspergers" complaining about aspects of their lives. So I don't see how "aspergers" is a superpower. |
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| ▲ | some_random 3 hours ago | parent | prev | next [-] | | >And we have been found to be more truthful, better at focusing, can hyperfocus, notice more details than NT's, and plenty more. We're only a disease cause we're the minority. Yeah and this is why Autism shouldn't be treated as a single condition, even if the cause is the same the outcome is meaningfully different than someone who cannot function. | |
| ▲ | kube-system 3 hours ago | parent | prev | next [-] | | Many with Aspergers take advantage of their strengths (as anyone does) but it is not without its difficulties | |
| ▲ | 3 hours ago | parent | prev | next [-] | | [deleted] | |
| ▲ | computerthings 3 hours ago | parent | prev [-] | | [dead] |
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| ▲ | nerdjon 3 hours ago | parent | prev [-] | | I have never in my life used "autism is my super power" so please don't put words in my mouth. I will agree that it is offensive but that is very different from saying "somewhere on the spectrum" when I don't feel like having a more in dept conversation. And again my point is that contrary to what the article seems to be trying to make, no one really considers Autism a single thing. | | |
| ▲ | jklinger410 3 hours ago | parent | next [-] | | I'm not putting words in your mouth. What I'm saying is, if we had different names for different types of autism, saying "autism is my super power" wouldn't be such an issue. And if "no one considers autism a single thing" THEN WHAT IS EACH THING? lol | | |
| ▲ | ceejayoz 3 hours ago | parent [-] | | > And if "no one considers autism a single thing" THEN WHAT IS EACH THING? lol We don't have a name for every color on the light spectrum, nor can the average person tell you what's different about #FF0000 vs #FE0000. They still exist! | | |
| ▲ | jklinger410 3 hours ago | parent [-] | | Autism should not be treated as a single condition | | |
| ▲ | ceejayoz 3 hours ago | parent | next [-] | | No one is disagreeing with that. People are trying to point out that the "spectrum" thing is the medical field doing precisely what you're asking for. | |
| ▲ | nerdjon 3 hours ago | parent | prev [-] | | Please point me to anywhere that it is treated as a single thing that isn't the people using Autism to push an anti-science agenda. It is an Umbrella term that is well understood to be a "spectrum" and well understood to not be the same for 2 different people. My question though, what is the point of separating it. What do we actually gain from doing so? I guarantee you these attacks will still exist. I don't have a degree in this but I have to imagine there was a good reason that Aspergers is no longer its own diagnosis. |
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| ▲ | nxor 3 hours ago | parent | prev | next [-] | | The article is about ASD. | |
| ▲ | dpark 3 hours ago | parent | prev [-] | | You obviously did not claim autism as a superpower. Still this “everyone is a bit autistic” stuff is kind of absurd. It diminishes the condition. > most people that I know, including myself, say that we are "somewhere on the spectrum" No one says “everyone I know is a bit paraplegic”, because that would be insane. Yet people glibly call themselves autistic as if having geeky hobbies or a job in software is the same as being diagnosable as having an autism spectrum disorder. | | |
| ▲ | nerdjon 3 hours ago | parent | next [-] | | > Still this “everyone is a bit autistic” stuff is kind of absurd. It diminishes the condition. Again nowhere am I saying that. Maybe I could have worded it much better but I never meant to imply, it happens that like myself a larger portion of the people I hang out with are diagnosed which for me works with just saying "most people" but I can see why that was not clear. | | | |
| ▲ | mystraline 3 hours ago | parent | prev [-] | | Well, I won't get a diagnosis. Especially so after trump put in RFK. RFK ordered all MDs to report all autistic people to the federal government. I know how history works, and know exactly where that leads. So yeah, self-treat in ways that make me effective. And so far, washed out of college but working as a senior systems engineer. I say I'm doing rather well. My dad also had the similar affect as well. He was too old to be diagnosed by medical establishment. |
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| ▲ | squigz 3 hours ago | parent | prev | next [-] |
| > To the point that most people that I know, including myself, say that we are "somewhere on the spectrum" or some variant of that. I'm not entirely sure why this comment is apparently so controversial, but I think people are confused by this. My reading of it was that you meant "most autistic people you know", and you yourself are. Maybe I'm wrong? |
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| ▲ | nerdjon 3 hours ago | parent [-] | | That is exactly what I meant to say which is why I added an edit. I for sure could have phrased that a lot better. Now yes there are people who are undiagnosed for whatever reason (including some people I know that don't see the point after being diagnosed with ADHD, I know personally I had to have this conversation with my psychologist to determine if there was a point to actually do it at that point) that use that phrase and it gets a bit tricky. But nowhere am I trying to imply that *everyone* is saying this. |
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| ▲ | some_random 3 hours ago | parent | prev | next [-] |
| I disagree completely, the discourse around RFK and "anti-science people" makes it extraordinarily clear that when most people hear "Autism Spectrum Disorder" they think exclusively of common, mild cases where the person has no serious issues existing in society and frequently benefits from their "disorder". They consider discussion of "curing" autism insulting, and challenge the idea that it's a read detriment at all. They do not for a moment think about the more severe cases that require people to have full time caretakers because they are unable to feed themselves. I can't read the article because of the paywall, but I assume that it is referring the fact that these two extremes need to be treated completely differently and even discussing ASD is made remarkably difficult because these extremes are the same diagnosis. |
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| ▲ | squigz 3 hours ago | parent | next [-] | | I don't think it's safe to draw conclusions about what "most people" think based on the discourse around RFK and his nonsense. | | |
| ▲ | some_random 3 hours ago | parent [-] | | Yeah, that's why I'm drawing conclusions based on what how it's being discussed in real life, social media, this thread, etc. |
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| ▲ | mrguyorama an hour ago | parent | prev [-] | | > common, mild cases where the person has no serious issues existing in society and frequently benefits from their "disorder" This is not at all a thing. People with some mild neurodivergence sometimes being good at very specific tasks is not even in the same ballpark as "Benefits" There's no benefit to a brain that struggles in modern society. >but I assume that it is referring the fact that these two extremes need to be treated completely differently Except they don't. What is different is the intensity of the treatment. My girlfriend needs patience and a little therapy. Her sister needs intense forever therapy and infinite patience and a system that will allow her to live despite never being able to be a productive member of society. >They do not for a moment think about the more severe cases that require people to have full time caretakers because they are unable to feed themselves. They are regularly the parents of exactly those people and are sick and tired of you speaking for them and making their life harder. Those people who need fulltime caretakers can only pay for them through social security benefits, and guess who is trying to change that? >even discussing ASD is made remarkably difficult because these extremes are the same diagnosis. The reams of neurodivergent people I have interacted with in my life have never found issues with this, and have regularly been very willing to engage with the nuance of a poorly understood disorder which by definition has no single cause and might be several similar looking diseases because that's what the word disorder means in medical science The discourse around RFK is that morons with no experience, training, or even ability to read introductory material apparently should shut the fuck up, and let the adults work. |
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| ▲ | stuffn 3 hours ago | parent | prev [-] |
| > Enough so that some phrasing along the lines of "my tism is..." is somewhat commonplace. In the 1990s we drugged kids (especially young boys) who weren't able to sit still with ADHD medication. Every parent's kid suddenly had ADHD, people would talk about their quirky behavior as "oh its my ADHD". This generation it's autism, and it's likely over-diagnosed just as much as ADHD. You do it in your own post, attributing a defined, binary, thing as "I am somewhere on the spectrum". If anything, your own post demonstrates the anti-scientific (pop-sci) instagramification of mental illness. You either have some quantity of illness or you don't. You can't just ascribe some quirky, possibly somewhat anti-social, behavior as being on the spectrum. Sadly, this is often used like ADHD self-diagnoses to gain sympathy or social leeway. Much to the disservice of people suffering from the condition. It comes as no surprise that psychiatry, and medicine in general, is suffering from a massive reproducibility crisis. It's not anti-science to call into question the amount of bunk, p-hacked, corporate funded garbage coming out of even the highest tier of medical grade journals. |
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| ▲ | grokgrok 2 hours ago | parent | next [-] | | Agreed; in short: any monolithic system will have individuals with natural dispositions transverse to that order, those individuals provide resiliance and novelty but also risk driving decoherence and defection. Yay pluralism. | |
| ▲ | standardly 2 hours ago | parent | prev | next [-] | | "You do it in your own post, attributing a defined, binary, thing as "I am somewhere on the spectrum" "You either have some quantity of illness or you don't." I'm not sure what kind of argument you are making for (or against?) "binary" symptoms. The DSM-5 clearly lays out the spectrum. There is a conglomerate of effects caused by autism, and where you are on "the spectrum" is determined by how many of the symptoms you have, and their severity. There is nothing wrong with someone claiming "I'm on the spectrum" if you don't know how or what they were diagnosed with. That language is consistent with the DSM. Unless they admitted to self-diagnosing, it seems wrong to assume someone is lying about their own experience. "You can't just ascribe some quirky, possibly somewhat anti-social, behavior as being on the spectrum" Quriky, somewhat anti-social behaviour (in your words) essentially is one of the dialogistic criteria. But nobody would be diagnosed with autism for that alone. Just like how autistic folks usually avoid eye contact. That doesn't mean they ALL avoid eye contact, and it also doesn't mean anyone who avoids eye contact is autistic. It's a wholistic diagnosis. One would need to be experiencing SEVERAL of the symptoms to receive an autism diagnosis. IME, the majority on the spectrum are indeed level 1, and high functioning, even to the point others might question if they are really autistic. If you take issue with people self-diagnosing, I don't think anyone would disagree. But your combativeness in just discussing the topic kind of looks similar to people who refuse to accept that autism is really a thing ("there were no autisms back in my day" kind of thing). | |
| ▲ | flatline 3 hours ago | parent | prev | next [-] | | I both agree and disagree with the over-diagnosis claim. Yes, everyone is suddenly autistic, which lessens the meaning or impact of the term. Also, the DSM 5 reclassifies a good portion of human behavior under the umbrella of ASD, so this is in part driven by the diagnostic model itself. We continue to see rising rates of severe autism in children, which are likely attributable to this reclassification as well as better common understanding of the diagnostic criteria. Presumably, just as many adults either qualify now or would have qualified as children. At the same time, there’s the neurodiversity movement that seeks to destigmatize and depathologize these diagnoses for both high functioning and more profoundly disabled individuals. Just because you don’t conform to the norm - and ASD is heavily defined in relation to deviation from an underspecified norm - does not make you “mentally ill.” So we have autism as an identity additional to a diagnosis, which I think can be really empowering for people, and also cause confusion and frustration for others. It’s a reclaiming of “disability” from the paternalistic and abusive medical and pseudoscientific practitioners that have been harming autistic people for decades. I also wish you were not being downvoted. You express some common sentiments and I think your comment adds to the conversation. | | |
| ▲ | squigz an hour ago | parent [-] | | There's a lot of stuff to unpack in such a discussion, but I only want to add that I see the prevalence of things like autism as a sort of "over correction" to practically all of history. Sure, some kids might relate to it and incorporate it as part of their personality, but 1) I don't think that's as widespread a problem as some people claim, 2) kids do this all the time with various things, and have done forever, and 3) I think that's a small price to pay for society learning about these things and destigmatizing them > I also wish you were not being downvoted. You express some common sentiments and I think your comment adds to the conversation. Common or reasonable sentiments or not, the whole "kids these days" overtone is tiring and annoying, and most people - online and in person - don't want to engage with that, because it does not imply a position of good faith. |
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| ▲ | pessimizer an hour ago | parent | prev | next [-] | | > It comes as no surprise that psychiatry, and medicine in general, is suffering from a massive reproducibility crisis. Psychiatry still hasn't coped with the fact that it spent most of the 20th century taking Freud seriously. More recently, it still hasn't figured out a way to repudiate the Satanic Ritual Abuse panic in the 80s. The people who were involved are literally still working, and have moved on to Facilitated Communication in severe autism, Gender Identity, and are still pushing around the fraud of Multiple Personality Disorder. Literally the same people involved in all of them, and now their children. [edit: forgot about one of the most important, Recovered Memory Syndrome] There's just no scientific method in most of psychology, it's simply guru-led systemic theories delivered mostly (but often entirely) by a single person who is licensing practitioners. What comes along with that is a complete inability for any of these theories to die. They just eventually become unpopular and unprofitable, and people jump onto the next thing. The psychopharmacological revolution has complicated this even more, because now there are billions of dollars wrapped up in it. The only advantage to SSRIs and the new generation of knockoffs was that they didn't cause tardive dyskinesia, there was never any statistical evidence that they performed any better than the previous drugs. And in the case of the previous drugs, they weren't ever shown to have much of an effect other than quieting down patients. They were all based on the wackjob theory that people having epileptic seizures suddenly became sane, and were one of the ways of inducing a seizure-like state, along with freezing baths, saline injections, electrocution, etc. All of the pioneers were also enthusiastic lobotomists. How can we say that these new tactics are medicine or science when the statistics on mental illness keep getting worse? | |
| ▲ | mrguyorama 3 hours ago | parent | prev [-] | | >In the 1990s we drugged kids (especially young boys) who weren't able to sit still with ADHD medication This never happened. We did not overprescribe Ritalin. What actually happened, is uninformed people like you with no actual evidence spread FUD about how giving kids well understood medicine was "bad" and the direct result of that was people like me, my sister, and my brother who all had stereotypical ADHD symptoms that we inherited from our stereotypically ADHD parents were tested and rejected an ADHD diagnosis by untrained school guidance counselors terrified of something that wasn't happening. Each of us spent the next 30 years utterly failing to thrive due to struggling with these symptoms, and experienced immense suffering from normal life things. We all have finally gotten real diagnosis, and some of us are getting real treatment, and we are so much better off now and able to function, and we are even able to pass those learnings back up the chain to our parents. A huge part of the "ADHD Epidemic" right now is the fact that a couple million people with clear ADHD symptoms were passed over by people who were supposed to be helping them due to the exact FUD you are spreading now. >This generation it's autism, and it's likely over-diagnosed just as much as ADHD. ADHD is not overdiagnosed. Autism is not overdiagnosed. Provide any evidence at all to support your shit claims. If someone with just a whiff of autism struggle gets diagnosed as autism, that's fine, and they will be explained how they might not even need significant support, and they don't really get any treatment at all. For people with gentle autism like that, it's mostly just about understanding why you are the way you are. "Oh, that's why I <X>". And you suddenly have a framework and vocabulary to better explain the struggles you have and the problems you experience, and a way to bond with people who have similar difficulties, and a way to think about your own brain that can help you lessen the negative impact of being different. >It comes as no surprise that psychiatry, and medicine in general, is suffering from a massive reproducibility crisis. There is ZERO reproducibility crisis in ADHD science, and amphetamine based ADHD medications are some of the most well supported, scientifically, medicine we have full stop. You can literally measure physiological brain differences of people with ADHD, and if you give a kid with ADHD a stimulant medication for their life, those measurable differences go away If you give ADHD people stimulants, all cause mortality decreases. They become statistically better drivers, which is something that ADHD people are statistically worse than average at. You lower all forms of addiction and substance abuse, because ADHD people struggle with self medicating and abusing substances as a rule. Notably, all the good Ritalin does for people who struggle with ADHD is not duplicated in people who do not have ADHD. People who take unprescribed Ritalin as a "study drug" have worse outcomes than people who take it for actual ADHD. Giving kids with ADHD stimulants reduces bone fractures and STDs! >You either have some quantity of illness or you don't. This is stupid. Some people with bad eyesight need glasses to do normal day to day things while others don't, or only need glasses for reading, but both are diagnosed nearsighted >Much to the disservice of people suffering from the condition. Stop talking for me, you are doing an atrocious job of it. >It's not anti-science to call into question the amount of bunk, p-hacked, corporate funded garbage coming out of even the highest tier of medical grade journals. It is entirely antiscience to demonstrably have no clue what you are talking about and yet claim the experts are wrong. That is literally antiscience. There's no p-hacking in ADHD science. There's no corporate funded garbage for ADHD. Ritalin is old and cheap and no longer patent protected. >If anything, your own post demonstrates the anti-scientific (pop-sci) instagramification of mental illness. How dare you thumb your nose at kids self diagnosing on tiktok (not instagram, pay attention) as "pop-sci" when you yourself know only reactionary FUD. Shame on you. Educate yourself. | | |
| ▲ | nerdjon 2 hours ago | parent | next [-] | | > This never happened. We did not overprescribe Ritalin. I think it is important to stress a difference between "over medicated", "over prescribed", and "over dosed" (often also called over medicated, something I have been guilty of). An example being my partner, apparently when he was a kid and diagnosed with ADHD he was put on a very high (I am only relaying what I was told) dose that he hated being on. That has caused him now as an adult to be very cautious to go back on the medication. Where as for myself I was not diagnosed until an adult, was able to actually advocate for myself and I started on the lowest dose possible for all of my medications (also treating Anxiety and Depression). While I do take several medications I would not consider myself over medicated because we have identified that at this point in time all of these medications are actually helpful, but I am very cautious of being on too high of a dose for each of these. I do think there are likely people that were put on too high of a dose too quickly to expedite treatment, but being on the medication in the first place was not the issue. It doesn't mean that the diagnoses was wrong though. | |
| ▲ | flatline 2 hours ago | parent | prev | next [-] | | I think your point could be better made with less vitriolic language, and I also think you get a few things wrong: a bunch of my peers were over-medicated to the point of being senseless during the late 80s and early 90s. These drugs were pushed on kids by many well meaning but exasperated parents whose children - mostly boys - could not sit still and behave in the way demanded of them by school and society. So it's a mixed bag with regard to the intent behind medication, and the effectiveness with which it was applied. Nowadays, if anything it's harder than ever to get amphetamines because of US drug scheduling policies and our patchwork, piecemeal healthcare system. | |
| ▲ | mtlmtlmtlmtl 2 hours ago | parent | prev [-] | | I just want to say, I wish I could give 100 upvotes, but I'll have to settle for one. It's definitely the case that there is undue paranoia about stimulants. One case you only briefly touch on, addiction. Let me elaborate. I have struggled with severe ADHD(largely untreated during childhood, mainting severity into adulthood as a result) for all my life. I've struggled with drug addiction for most of my adult life(mainly cannabis). The amount of hoops addicts are made to jump through to get access to amphetamines is insane. Generally the requirements in my country(Norway) are to deliver weekly clean drug tests for 3 months. In the case of heavy cannabis use, it takes up to 3 months from going cold turkey until tests are negative. So, a 6 month commitment before treatment can even begin. Now, the relationship between ADHD and cannabis is interesting. I know some ADHDers who swear by it as a treatment. These tend to be of the predominantly hyperactive/impulsive type. For me, it can't really be called a treatment. It actively worsens my condition in terms of executive dysfunction. Although it does improve some of the aspects like hyperactivity and emotional lability and helps make things bearable. By the time I'm a year into a binge, my life is such a mess that getting myself out of it without meds is completely hopeless. Here I'm talking my apartment being such a mess I'm generally expecting to be woken up by people in biohazard suits any day now, and wondering how the hell I haven't contracted some kinda crazy bacterial disease by now. Cleaning it up is weeks if not months of work even with meds. Without it's inherently impossible. And the cannabis at least numbs me to the horror of it all. So for 6 months I have to abandon that small comfort and just exist in this hellish life until I can even begin to improve things. Try to imagine how hard that makes going cold turkey in the first place. Not to mention the fact that meds significantly help me manage the addiction in the first place. I've successfully made it through this 6 month purgatory 3 separate times in the last 13 years. I've made more failed attempts than I can count. Wasted most of my 20s hiding from the purgatory inside a bong. I often wonder ehat my life would've been like if the rules weren't so strict. There's no evidence supported medical justification for waiting any longer than about 4 weeks. Out of the bajillion or so failed attempts, I reckon maybe 3/4 made it that far. Go figure. I'm currently, close to 2 years semi-sober(doing a new moderation based approach to my addiction, very successfully, smoking exactly once every 4 weeks. Bit unrelated to the stimulant thing, it's more about relapse avoidance. But it's worked wonders so far.) and doing better than ever, but I still have a long way to go. And I will fight anyone who sows FUD about amphetamine or methylphenidate. These are wonder drugs. If you want to freak out about psych meds, go read up on neuroleptics. Now there's something truly horrifying. But of course, that only happens to crazy people hidden away in mental wards, so no one cares about them. I've been to those mental wards and I have seen some shit I will never forget. People whose lives were destroyed, reduced to an unbearable living hell for the remainder, by a supposed "treatment". These people are treated like animals. Go talk about that. Shut the fuck up about stimulants and SSRIs already, jesus. And go touch some grass. |
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