The medical profession is not open about any kind of self diagnosis.

I've learned through experience that telling a doctor "I have X and I would like to be treated with Y" is not a good idea. They want to be the ones who came up with the diagnosis. They need to be the smartest person in the room. In fact I've had doctors go in a completely different direction just to discredit my diagnosis. Of course in the end I was right. That isn't to say I'm smarter, I'm not, but I'm the one with the symptoms and I'm better equipped to quickly find a matching disease.

Yes some doctors appreciate the initiative. In my experience most do not.

So now I just usually tell them my symptoms but none of the research I did. If their conclusion is widely off base I try to steer them towards what my research said.

So far so good but wouldn't it be nice if all doctors had humility?

If I was an airline pilot, I'm not going to listen to a passenger telling me which route I should be taking.

This is not about ego or trying to be the smartest person in the room, it's about actually being the most qualified person in the room. When you've done medical school, passed the boards, done your residency and have your own private practice, only then would I expect a doctor to care what you think a correct diagnosis is.