My sympathies.

As hard as it is, supporting family members also need to learn to prioritize taking care of themselves and avoiding a spiral towards burnout. With dementia, there is often a time when the patient needs a more controlled environment with 24x7 supervision. Dementia sleep schedules and behaviors fall apart and are not really compatible with a family caregiver's own health needs.

Depending on the dementia case, risky behaviors may emerge at night, and having observant caregivers awake 24x7 may be very important. The financial picture for this is quite difficult in the US. Normally this requires a care facility at some point, as it is impossibly expensive to bring sufficient dementia care via visiting professionals.

To safely handle dementia with "sundowning" and wandering behaviors, you usually need a facility that has about a dozen residents or more. Then, budgets allow for multiple onsite staff and overnight wakeful staff. This can bring more distinct staff roles too, e.g. cooking and housekeeping versus care.

Even this may be overwhelmingly costly, to the point where the dementia ends up depleting the estate and then shifting to some kind of government support. For family or trustees managing this process, it is full of difficult decisions regarding budget and care tradeoffs. For example, do you splurge on "nicer" facilities or other caregiver factors early on, or try to reserve more funds for the inevitable crises? Dementia can be a drawn-out process, where care needs expand to a crescendo before collapsing back to hospice care, which may be more like other terminal illnesses.

Thank you. All of this is absolutely true. Thankfully, there has been no risky behavior. However, as soon as that is the case I have some pretty big decisions to make.