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pseudo0 2 days ago

> A valid and reliable survey instrument was mailed to 4,924 households on the mailing lists of six non-profit Down syndrome organizations.

Definitely no sampling bias here... And given that the vast majority of people who do prenatal screening decide not to have a child with Down Syndrome, I don't think the people who choose to have a Down Syndrome child are really representative of prospective parents as a whole.

The revealed preference is clear, particularly in places like Iceland where prenatal screening is ubiquitous. They have effectively eradicated Down Syndrome going forward.

smeej 2 days ago | parent [-]

The perspective in question is about what it's like to raise a child with Down Syndrome.

Why on EARTH would the opinions of people who were so scared of the experience that they never tried it at all even for a minute be relevant to that perspective?

pseudo0 9 hours ago | parent [-]

Because people can reasonably predict whether they will be happy doing something before they do it. Like for example, if you polled people who had gone skydiving and asked whether they enjoyed the experience, I'd expect many would say yes. After all, they voluntarily signed up for it and paid money to do it. But if you randomly selected people and made them jump out of a plane, the results would be very different.

Also, people who have had negative experiences raising a child with Down Syndrome are presumably far less likely to be involved with non-profit organizations related to Down Syndrome.

smeej 4 hours ago | parent [-]

What? People suck at predicting whether they will enjoy things, especially when they know little about them. Regret is staggeringly common. Look at divorce rates if you want a life decision of comparable magnitude. And the opposite is just as true, that people are constantly finding new things they enjoy, or even love passionately, when they least expected it.