▲ | anktor 9 days ago | |||||||
How would support look like in this situation? Honest question I simply don't know | ||||||||
▲ | schwartzworld 8 days ago | parent | next [-] | |||||||
In my case: Showing me how to use the machine Showing me how to wear the mask Configuring the machine with anything other than the default settings A new machine with the default settings is a nightmare. The apap algorithm will spike your pressure up to 16 (which is too high for most people) one minute and drop down to 4 (which is too low for most) the next. At the high end is aerophagia and leaks, at the low end, your apnea events will still happen. When I called my doctor and explained the machine made my sleep worse, her office said “we gave you a machine. It’s out of our hands. Would you like us to refer you to a psychologist? The problem must be in your head.” This is almost verbatim. The equipment supplier wasn’t much better. They offered to do a “mask fitting” but it was mid 2021 and the woman didn’t even want to be in the same room as me for fear of covid. So what should they have done? I dunno. Eventually a friend recommended a mask that worked for me. I learned to analyze the data reported by the machine and changed the settings myself to something that worked for me. It took a year, the worst year of my life. Tired and constantly waking up. Thank god for YouTube and OSCAR. knowing what I know now, I can (and have) help someone else do this process in a week or two, but I had nobody to even ask. | ||||||||
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▲ | koolba 9 days ago | parent | prev | next [-] | |||||||
At the extreme end of concierge medicine I could see the doctor getting into bed with you. | ||||||||
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▲ | ethersteeds 9 days ago | parent | prev | next [-] | |||||||
I think it would be a good case for handing off from the prescribing doctor to some kind of home health aid / respiratory therapist who can make house calls and help make adjustments at the home. | ||||||||
▲ | vkou 9 days ago | parent | prev [-] | |||||||
It needs extensive calibration, if you don't want it to either be ineffective, or wake up in the morning, with your stomach pumped full of air, like a balloon. The latter is quite painful. | ||||||||
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